What is something that almost everyone struggles with in life?  Clarity.  We ask ourselves over and over what will tomorrow bring, what is my five-year plan, will I live another day, when will I meet my soulmate, why am I in this relationship...  The string of why's and what if's are infinite.  Yet we when look to our past, we can see then and only then an almost perfect clarity.  We can see our mistakes, what we did right, what we did wrong and also how we got to where we are right at this moment.  It is when we try to look forward that things can get confusing.

I remember my grandfather in his later years.  He always had such a peace about things.  It was like he had all the answers and he had everything figured out.  The truth is he had learned from his past that nothing is truly in our control and everything can change.  Once you realize that then your perspective on life changes.  That perspective in itself is a moment of clarity.

To gain this clarity perspective, you must first surrender to the fact that you can only control so much.  You can't truly control other people, gravity, bad luck, good luck or how the chips may fall if you will.  You might be able to control some things but if you look at the bigger picture many times you are reacting to the information that you have available to you.  You are also reacting to what you think you can do and what you see as your abilities or restraints in life.

To take things another step towards clarity, you must realize that not only are you not fully in control of you, others are not in control of you either.  We are all tethered together by forces we cannot see.  When something happens to one person, it usually effects others.  The bigger the splash, the bigger the wave or effect.  Sometimes we are moved by someone's reaction we see.  Sometimes we are moved by someone's words or how they eloquently gave us some knowledge we were seeking.  We gain the most clarity by listening to others that have experienced what we have not.  Those that have suffered, those that have lived through different things and people that seem to be able to always extract learning from experience.

Clarity has no formula.  I can't tell you what to do to achieve full clarity.  I can only share with you what I know at the moment.  And that is you must be at peace within yourself knowing that you are not in complete control of everything.  And that is ok.  Remember that no one else is either.  They may seem clear but most people battle the same issues of clarity or haven't experienced the realization that they truly are not in control.  Maybe those that think they have it all figured out have no clarity at all, just ignorant bliss.  Maybe those that realize and relinquish that they are not in control can smile because they have true clarity.

The past five years have been a gut check for me.  I thought that I had everything figured out.  I had a five, heck even a ten-year plan for what I was going to do.  Then I got sick, couldn't work anymore, lost my house, my car, all my savings until finally I lost my marriage.  At each point of loss, I would always say this must be the bottom and clarity will come soon.  And clarity never came completely at any point.  Sure I could look back and see things clearly.  But looking forward was thick mist, a fog if you will of uncertainties.

I would win some battles with my health and then lose ten others.  The weight of the world kept sitting on my shoulders until one day I realized that in order to survive, in order to thrive I had to let go of the things that I could not control.  I had to surrender to the fact that I can only do so much, can only try to be the best person I can be and then watch my seeds grow.

Sometimes what I would plant would be beautiful.  Sometimes the seeds never broke the soil.  But I was in control of planting the seeds and at least trying.  Sitting idle while the world went by wasn't going to help me gain clarity, get better or save my marriage.  Was it and is it a painful transition, sure it is.  But I have made a choice to go down a path. And down that path I will go until a better path comes before me or I can go no further.

What became clear to me is that I put the biggest limitations on myself out of fear or doubt.  When I cast aside those fears and doubts, I realized that I was holding myself back more than disease, what I thought others thought of me and even the circumstances out of my control.  I was holding myself back because I was afraid to fail, afraid to try and afraid to have more pain.  That's when I started seeing life a little more clearer.

Things began to change and the weight of expectations began to lift.  Do I have everything figured out?  Not even close.  Will I ever?  I hope not.  If I think I have everything figured out then I will have lost sight of the truth or I will be looking back on life instead of forward.  There are times that I still walk in fog but at least I have more and more days now that I don't worry about what tomorrow may hold.  And to me that is peace, that is clarity.

Every person must one day in life face a simple fact.  None of us are completely in control of our fate.  There are many forces tugging us in every direction that we try to mold and shape in a life we feel worth living.  Bad things happen.  Good things happen.  We struggle in hard times and we find hope in the little things that do go our way.

For the past year, I have been making significant physical progress with my health.  My back has healed very well and I am able to do more and more each week.  The pain that was a daily burden in my body is still there, but I have found ways to work around it, accept it and at times forget completely about it.  My mind seems to be getting stronger and my spirit is gaining ground.

This year has been a year of surrender for me.  I have had to surrender that I am not in control of the things around me, but I can change my attitude about things and keep fighting.  Now that I can say that I have completely lost my old life and the things that used to define me, I have started over.  Not just from a physical standpoint, but from an emotional and spiritual standpoint as well.  I am trying to bring forth the best person that I can be, shedding the scars of the past.  It is a process that I will write more about one day in detail.  For now just know that it has been a painful and also a liberating process at the same time.

There are so many times in life where we have to let go of things that we once loved, people that we once loved and even places that captured our hearts.  These things will happen to all of us throughout our lives.  It is important that we take the time to let them go properly and say goodbye.  Especially to the people that were a part of our lives and let them know how much we appreciate the good things we have learned from them and how they helped us to become better inside and out.  If we don't take the time to do this and let go properly, life will eventually circle around and leave us with regret or emptiness from missing the opportunity to let go properly.  I can honestly say that I have learned this the hard way and have been hit by that circle of life not cherishing those people, those moments properly.  But I am realizing this and becoming more and more thankful for the smallest pieces of hope that past my way.  For once, I am savoring every drop of hope that does come even if one day the flood gates of hope open and I drown in it.  I will bask and not take one ounce of hope for granted.  For it is that hope that has driven me this far.  A hope that life is not finished with me yet by far and that there is a greater purpose beyond the journey I've travelled to this point.

Hope is a good thing, a very good thing.  But hope only feeds what drives our purpose and that is passion.  Purpose, Passion and Hope are the three things that define, sustain and keep us moving forward to a better life (*much more to come on this topic).  It may be a life completely different than we imagined and the molding, breaking and building process is different for each one of us.  Thankfully, not all of us have to endure losing everything to realize how we can find our purpose in life.  I'd like to think that those of us that do lose so much have been chosen to do greater things if we allow ourselves to surrender to the process.  I have fought this for so long thinking that I could become the man that I used to be on my own.  I was wrong and I will never be that same man again.  And this is a good thing.  For I have seen my mistakes in life and I am still learning there is so much more that I can do.  But I could only do this by totally surrendering the person I was before and all the things that I thought I had to control.  Turns out I never really was in control of those things anyway.

So take a moment to be thankful for those little moments of hope.  Whether it be something as great as a good day or a hug/smile from a friend.  Maybe it is from old friends and family that support you and have never given up or a new friend that lifts your spirits and gives you greater hope.  Live life with purpose, fill it with passion and above all keep hope alive that life can be a wonderful thing even if that means letting go and starting over.  Don't dwell in disaster, failure or things you cannot control.  Trust me, I have been in that pool and you can't swim in it, only drown.  Never lose hope that good things can still happen even when all else is lost.

Every night, I lay awake and think of life.  Life is such a wondrous and beautiful thing that I used to take for granted.  I always thought that I was living life to the fullest back before I became where I am today.  Every day was just like every other day except for special occasions and things planned outside of the ordinary.  Life was easy and everything seemed to be falling into place.  That is what I thought a beautiful life was.  It wasn't until everything changed that I realized that life can be so much more.

Life can be something of a mystery.  We read books, magazines and watch everything about life.  I often get caught in that watching phase myself looking at what a marvelous thing life can be.  What really gets me is when I step back and realize that life is here, it is now and it is what I am doing.  When you really think about it, you can make life what you want.  It can be exciting, it can be boring, it can be like everyone else or something extraordinarily different.  Our only limitations on what life can be are what we are physically able to do and the time that we have to do it in.

I used to live life by how much I could get done in a day.  How much could I complete or accomplish before I went to bed.  Now that was living for me.  These days, I struggle to get one thing done without physically collapsing.  It isn't every day that is like that but my life is definitely unpredictable.  An unpredictable life lends itself to caution and not making plans.  I've tried making plans and constantly coming up short.  I've tried not making plans and being happy when I could do anything.  Both ways have good and bad points. 

It is said that a man makes his plans and God directs his path.  What happens when a man stops making plans?  Does he wither and die?  Does he get pushed along in the sand like a shell from the ocean tide?  There can be a season in which a person can live without plans.  When your health is taken from you and everything is questionable, even hour to hour, you take a swipe at making plans.  Sometimes they work out and sometimes they don't.  I get caught up in this frustration often and it doesn't help me see and understand life.  So I tried, just for a while, to just watch the world.  I don't mean sit down and not engage with the world.  I mean meet the world where you are and watch how people engage with each other.  In this phase of my life, I am learning a lot about the world around me and what is really important.  If it were not for my condition, I would be missing watching the very fabric of life unfold before my eyes.

Some mornings I have the strength to walk for a little while.  I see hundreds of cars rushing by filled with people going somewhere, doing something.  I often wonder if they are going to work.  Do they have a big meeting that day or are they worried about paying bills this month?  My headphones are always are alway firmly embedded in my ears so that I have my own soundtrack to life instead of the noise.  The noise around us is what distracts us from really seeing the bigger picture of what's going on in life.  Your noise may be money, your job, a meeting you're going to, the kids, getting married, having a baby, so many different noises both bad and good that can crowd out observation and life.  I like to smile at the cars going by to see if someone will smile back.  Chances are someone will and I hope that small smile will dampen their noise if just for a moment.

My life has been simplified to nothing, well nothing as far as material things.  I own next to nothing, I don't have too much more to lose and I live by the kindness of others.  I do have two wonderful and beautiful daughters that I miss so very much.  I hope to be with them again someday.  That in itself will be a great life. When you are taken down to your bones then nothing can be taken for granted anymore.  The blinders are down and you are exposed for who you are and everything you do is watched carefully.  Not because you are something special per se, but because you are different than everyone else.  People are curious about what a simple life consists of and the barriers that you face every day.  No one cares about the person that can do everything and overloads themselves with more and more.  Those people are great to watch and I wish that I had half of their energy.  But at the end of the day, I ask myself what would I do if I was given a second chance at this life.  What would I do if I became well enough to do more.

I have plans sure, noble plans even.  But the true test would be when that power was given back to me.  Would I stay true to my heart and help others or would I seek to make lots of money again.  My hope would be that I would be able to help others and make a difference in this world.  Money leaves you as fast as it comes so I have no desire to chase that life again.  But it is funny how it is always in the back of my mind.  If I had money, I always think, I could do this and this and this.  Well that just isn't true for me.  If I had money, I would probably just spend more time in research hospitals looking for help and answers.  Which, by the way, is not living.  I found that out the hard way.  I could stay in my own home or lay on a beach trying to get better, write or contemplate life and healing with money.  But that doesn't change who or where I am in life.  I could use some sun though seriously.

So why do I write something entitled "Life is Beautiful" when clearly I am stuck in this seemingly infinite abyss of suffering, poverty with no end in sight?  I'll tell you why; expectation and hope.  Even in the deepest, darkest pit of suffering there is hope and an expectation that things can always get better.  Sure the opposite can be true as well but that is when you lay face down in the pit.  When you are at the bottom of life and you simply roll over face up, life appears above you.  There is light in contrast to the darkness that surrounds you.  Eventually you have the courage to get up on your knees and maybe even stand at the bottom of the pit.  Sure you may fall again but there is something within us that wants us to overcome.  It is hard to explain in simple terms so I will just say that my spirit knows there is something greater coming.  It may not be fulfilled in this life but I haven't given up on that.  It is that hope, that expectation that allows me to look at all the people around me with normal lives and normal problems and see the extraordinary.  I see the potential of so much more in humanity.  I see a better world and a world where so many of us are not mindblind to the reality that passes us by.  I see a world not driven by consumption but service to others.  A world of kindness and peace.

I also see the clouds that roll by and the overwhelming darkness that is the reality we live in.  I don't know how to change the world and roll back the clouds.  There are no clever quotes or processes that I possess to change this world overnight.  But I can tell you that as dark as life can be, it can be darker still if we plant our faces down and don't try to change things.  Trust me, I have plenty of mud on my face from rolling over face down.  Every day is a journey and life, no matter the direction, can always become greater than we can imagine.

It is hard to write and open your life up during a time such as this.  A time such as the period that I am going through.  It is so deeply personal, intimate and painful.  Some people close to me know most of the story, but I haven't shared what's going on with the rest of those that support me.  Well, I can't share the details.  What is going on is too painful for consumption.

I lay here awake again at two in the morning unable to sleep.  I am alone, away from my girls and my marriage is ending.  There are so many thoughts that race through my mind about how this could happen. There are also thoughts about could anything different have been done.

When you are fully well in life and health, people expect you to be able to overcome anything.  To pull up your bootstraps and get up and fight for everything.  I have always been that person.  In sickness, I have had to change how I have fought because I lack the ability and stamina to fight like most people.  I could say that my neurologic and systemic disease has robbed me of life.  Some would call me a victim.  I could say that even laying down, I was always fighting.  Some would harshly say get off your butt and fight harder.  There is no winning when things fail.  When your best isn't good enough for others, they tear you down and spit you out.  It is painful.

I was watching Mr. Holland's Opus the other day and I was reminded of how even at your best you are not good enough.  In the movie, Mr. Holland worked all day and all night to try and make things work in his life.  But in the end, he was not giving his hearing impaired son what he needed.  He shouted "I'm doing my best!".  To which his wife replied "well your best is not good enough!".

There are times when we do need to hear this.  It is painful to hear especially when you are not well and already feel like everything is a painful task.  But I was reminded of this when I had to leave and move out on my own.  I realized how much more I could do.  The sad part is, it isn't very much.  My best was already being given as I suspected, but it wasn't good enough.  So I have repeated things in my mind a thousand times, "how good is good enough".

My simple answer is this.  At the end of the day, I have given my heart and my soul for the ones I love.  Some have stuck around and been steadfast and supportive.  Some, painfully, have decided that I don't meet their expectations and have moved on.  This is the hardest thing that I have had to reconcile within my life.  I have always been a fighter and I will never stop.  The people that know me best, with one exception, have stood by me without wavering and supported me till this day.  The exception is the most painful one of all.  It is the one I can't talk about.  It is the one that has dealt me a blow so painful that it has dragged my heart and soul to depths that I may never recover.  But here at the bottom, I am slowly, painfully try to stand again.  My health is failing again, I am alone and starting over.  And that was my good enough that failed.

Sometimes our best efforts do fail.  We cannot always control our destiny.  We think that we are in control of our lives but it is all an illusion.  One minute you can be healthy and working, the next minute you can be diseased and homeless.  It can happen to anyone at anytime.  I'm not here seeking compassion for what is going on.  I have been dealt what I have been dealt.  I will keep moving on as I always have, ever more aware of how painful this journey has been.

I have made some great strides this year in many areas, but they go unseen by many.  I no longer have to use a cane to walk.  I voluntarily and against medical advice, weened off of all pain medications even though I do suffer from immense systemic pain constantly.  I did this as a part of my good enough.  To prove things that I shouldn't have to.  But also to do things that are better for my body long term.  I have been working intensely with meditation and biofeedback therapy to help my mind work around the pain my body is manifesting.  It doesn't always work, but I am slowly making progress for the first time in five years in this area.

I have accepted my fate of pain and suffering, but not imminent death.  I won't accept death until it takes me.  Sure I won't live as long as every one else, but that's ok.  I'll take whatever I have been given and embrace it.  None of us truly know how long we have to live, we just expect it.  Nothing else matters to me other than my two girls and getting as well as I can to help others.  I want to start missionary work if my body and mind can get stable enough for the task.  It is the hardest thing, not having control of your mind, your logic, memory and thinking.  My mind most days is a fog that I have to carefully and painfully sift through to do simple tasks.  It is hard to understand what is going on, but I do have hope that the fog will one day lift and I can begin to heal in that area.

So I leave with this; my best is what it is and it always will be, my best.  You are allowed your judgement and perception but you also should think about your life first and then never judge others.  Accept a person for who they are and treat them as the person they can become, not who you want them to be.  Encouragement and support go a thousand miles further than judgement and condemnation.  For you will find one day, when all the facts are laid out before you, that my good enough was way more than you ever knew about or could possibly comprehend. 

I haven't written in a very long time.  I have been going through something so deeply personal that it has taken all of my strength and at times, my will to live.  I'm not saying this out of the need for pity and sympathy but as a cry for help in the most honest and genuine way I can think of possible.

Throughout my life, I have always had this picture of how I wanted my life to be.  A beautiful and caring wife, wonderful kids with kind hearts and for me to be someone more than the average person that you meet on the street.  Someone that when you meet, you instantly have been affected by them.  The theory of celestial mechanics teaches us that when two objects collide, they can never be the same.  The object paths have forever more been changed.

I have always felt that I had some effect on people but no more than the average person.  After going through this illness for the past five years, I have become someone that has been more affected by others it seems than I have on other people.  Some would argue that point and say it is the opposite but that is just how I have felt.  I don't feel that there is ever a person that I meet, talk with briefly through email or really interact with that isn't changed by that collision or interaction.  They may not feel it instantly but I feel it almost every time immediately.

Over the past five years, I have tried to find the best in things throughout the worst experiences of my life.  It has been tough going from having the ideal life you always pictured since a child and then watching that life fall apart as if most of it never happened.  I can tell a sad tale of woe but that isn't what I'm about, you should know that by now.  I have always thanked God for the ground or asked him what my purpose is in this suffering, this breaking and remolding of my life.  Every time things started to make sense, I would be completely broken again.  I think the big problem with being broken is that you try to piece your old life back together with glue or whatever will hold it together.  I have learned the hard way that you can never piece back together things that have been broken by this life.  They have been broken for a reason.  The big question is, at what point will the breaking cease and you are remade into something better, something more useful to humankind.

I won't share what deeply personal new breaking has occurred, but I will say that it is far more than I could have ever prepared myself for and has torn my heart, my soul and even my physical being to shreds. There is no picking up the pieces from the series of events that lead up to this.  There is no changing the past, doing more or trying to fix this broken man.  Because now, than man and everything he believed to be true have been ground to dust.  I won't say that I have lost everything because every time I say that I always find another cliff to blindly fall from.  I want to at some point thank God for the ground, for breaking my fall, for breaking me into something more useable to this world, but I fear that hasn't happened yet.

So I try and move forward.  Every hour is a different emotion and a flood of memories from every face, every sound every word I read.  The tears are slowing down some.  The anger still comes in waves.  I just have to believe that things will somehow get better.  Hour by painful hour, I will myself past my physical state into how I can help others.  Not how I can help myself.  I have no answers for that and I have been buried under that burden for years and it has cost me more than I could have imagined.  The balance has always gone back and forth to trying to do the best for my family and at the same time trying to find a way to get better.  I have failed at both.  So now that I have officially failed, I have to move forward and make sure that my family has the best life they can, I remain balanced in my search for answers, but mainly I realize that I cannot do this alone anymore.

I have always been hesitant and head strong when it comes to asking others for help.  People have always offered supportive, financial and all kinds of help.  I've taken what I have always thought was needed for my family but never saw the true effect my life was having on the one that I loved most dear.  Somewhere along the way, I lost her.  I lost her to this disease, my constant search for answers and being consumed by pain, suffering and my inability to step out of my box to help those closest to me trying to endure me.

So I am listening God, universe, friends and anyone that has been involved throughout my life.  You have my attention.  I'm sorry that I have been so stubborn in my approach to life, but this is new to me too and I don't want to suffer and be in this spotlight.  I never have wanted it.  I have tried my best and failed in so many areas.  And now, I am falling off of another cliff again with no ground in site and darkness surrounding me.  But I haven't given up.  I've come close, too close several times in the past weeks to giving into an easy out, a selfish end.  But I have to fight for my girls.  They deserve better and they deserve my wisdom and my insights on life that no other person will be able to teach them.  They are wonderfully teachable and patient, through thick and thin.  I couldn't ask for better children.  I would say that they deserve so much more in life, but I have learned that deserve has nothing to do with this life.  I've seen the sweetest souls suffer relentlessly and the coldest hearts be rewarded with all of their earthly desires.

I believe that, although broken, my heart is still pure in what it seeks.  I believe that even if my pursuit of helping others and making this a better world is never finished in my lifetime others may just catch on and follow.  I know that there is a lot of healing that needs to happen and I can only do my best to make that happen.  What I will ask from all of those friends and supporters from around this world is to please ask for answers to what this journey is all about.  Ask that I may given strength and knowledge to continue on and fight for my children and all those that cannot fight for themselves.  Help my voice carry further by asking others to join in this fight not just for me and my life, but for the lives of all of those suffering silently every day.  I need a lighted path at my feet showing me a better way.  I need God's light and the light of all of those connected to me to help lift this burden from my shoulders so that I may stand for longer periods and do what is shown for me to do.

I have seen so many things and there are so many things that I know need to be done.  But I need help in every way possible to move forward and promote life where there is death.  To dismantle sorrow where there is suffering and to share a collective story of those that have helped change my life for the better.  I'm bracing for the next impact.  I just hope that there is no more sand but instead  stone, no more suffering without answers and that the light of hope and life shine through brighter than ever.  You don't have to ask what to do for me or for others in need, just do what comes to your heart.  Will you join me and renew this fight?